What We Do
Our new postcard campaign showcases a child with narcolepsy in an effort to connect other kids and families with actual “faces of narcolepsy.” No matter what people are going through, it’s nice to know you aren’t alone in it. Through this campaign, we hope to shed a positive light on kids with narcolepsy without discrediting the day to day struggles that each one of these kids and families face. Please click here to let us know that your child would be willing to share a bit about him or herself through this campaign.
Please like our public Facebook page. This platform allows us an opportunity for those interested in supporting our community and spreading narcolepsy awareness, or learning more about how to do so, a place to connect with us and learn more about what life is like for these kiddos as they face the uncommon challenges of growing up with narcolepsy. Here people can donate, share experiences, ask questions and find narcolepsy facts they can share with others.
Are you a parent, guardian or actively-involved grandparent, aunt or uncle of a child with narcolepsy? If so, this private group is for you. Here we offer each other support and encouragement in a safe, judgement-free environment. Ask questions. Share your ups and downs. Join in discussions. Because of the nature of this group, we do require certain member request questions to be answered prior to acceptance. The safety of the children is paramount, and we want to ensure that all members feel comfortable sharing freely.
This is our signature offering and event. We are so clear about the importance of connecting and empowering our families. Our solution to how to make this happen in a fun and relaxed atmosphere came about in this camp retreat-conference hybrid event open to the WHOLE family. Come hang out with other narcolepsy families on the New Braunfels, Texas, campus of T Bar M Camps. Kids will have time with each other as they chat, play, craft, explore, build community and share their own stories as they discover that they are not alone in this journey. Parents have their own time to connect and learn through conference-style sessions and open conversation time. We also know that families often struggle to find time to do things together. We have designed these Campference retreats to provide time for you to spend together, too.
This event is made possible through generous donations and sponsorships. With your contributions we are able to keep Campference and affordable opportunity for families. Please let us know if you would like to sponsor a family, speaker, meal or activity at Campference by using our inquiry form.
Managing the demands of school can be tough for any child. Managing all this through the fog and exhaustion of narcolepsy presents a significant, strenuous, even prohibitive, challenge. Fortunately, we have a wealth of coping strategies and services at your disposal.