What We Do


Facebook
Campference
Resources

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Facebook

Facebook Page

Please like our public Facebook page. This platform allows us an opportunity for those interested in supporting our community and spreading narcolepsy awareness, or learning more about how to do so, a place to connect with us and learn more about what life is like for these kiddos as they face the uncommon challenges of growing up with narcolepsy. Here people can donate, share experiences, ask questions and find narcolepsy facts they can share with others.

Private Facebook Group

Are you a parent, guardian or actively-involved grandparent, aunt or uncle of a child with narcolepsy? If so, this private group is for you. Here we offer each other support and encouragement in a safe, judgement-free environment. Ask questions. Share your ups and downs. Join in discussions. Because of the nature of this group, we do require certain member request questions to be answered prior to acceptance. The safety of the children is paramount, and we want to ensure that all members feel comfortable sharing freely.

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Campference
T Bar M Fun Collage

2024 Campference

This is our signature offering and event. We are so clear about the importance of connecting and empowering families impacted by narcolepsy. Our solution to how to make this happen in a fun and relaxed atmosphere came about in this camp retreat-conference hybrid event open to the WHOLE family. Come hang out with other narcolepsy families in the beautiful waterfront setting of Sandy Cove Retreats in North East, Maryland. Campers will have time with each other as they chat, play, craft, explore, build community and share their own stories as they discover that they are not alone in this journey. Parents have their own time to connect and learn through conference-style sessions and open conversation time. We also know that families often struggle to find time to do things together. We have designed these Campference retreats to provide time for you to spend together, too.

This event is made possible through generous donations and sponsorships. With your contributions, we are able to keep Campference an affordable opportunity for families. Please let us know if you would like to sponsor a family, speaker, meal or activity at Campference by using our inquiry form.

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Resources

Child Asleep Head On Desk

Managing the demands of school can be tough for any child. Managing all this through the fog and exhaustion of narcolepsy presents a significant, strenuous, even prohibitive, challenge. Fortunately, we have a wealth of coping strategies and services at your disposal.

Care Plan

 

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